How LEGO helps this affected person get by chemo one mission at a time

When a father of 4 was recognized with lymphoma, he turned to a toddler’s passing time to get him by therapy.

By TJ Banes, IU Well being Senior Journalist, tfender1@iuhealth.org

Whereas stress-free lately for a therapeutic hand therapeutic massage, Derek Povinelli talked about how he coped with a most cancers analysis. The therapeutic massage was offered by IU Well being CompleteLife therapist, Michelle Bailey. CompleteLife provides yoga, artwork, music and therapeutic massage therapies to sufferers at IU Well being Simon Most cancers Heart and College Hospital.

For Povinelli, 42, the remedy was a part of his deal with decreasing nervousness. Bailey additionally spoke to Povinelli about ache, nausea and neuropathy – all unintended effects of chemotherapy.

Povinelli has been married to his spouse, Shelly, for 2 and a half years and is the daddy of 4 ladies, ages 11, 13, 14 and 15. About six months after getting married, Povinelli went to a hospital close to his Greenwood dwelling. went and complained of stiffness in his arm. A chest x-ray revealed a large mass round his coronary heart. A biopsy adopted after which an operation to take away the lymph node. It was November 2022. He was despatched dwelling on remedy and advised to schedule an appointment in January. That appointment confirmed no modifications.

Derek Povinelli

“At this stage he was sleeping upright as a result of all the pieces was swollen. The remedy was an excellent excessive dose and we did not need to proceed doing it, so we determined to get one other opinion,” mentioned his spouse. In February, they traveled to an out-of-state hospital the place he spent 5 days. One other biopsy was carried out and he met with lung, oncology and infectious illness docs. At the moment, Povinelli was confirmed to have Major Mediastinal B-Cell Lymphoma (PMBL), a uncommon kind of non-Hodgkin’s lymphoma that develops within the space of ​​the higher chest behind the sternum.

In March 2023, Povinelli grew to become a affected person of IU Well being and Dr. Rita Assi, who makes a speciality of hematology and oncology.

“I like Dr. Ass. She may be very affected person and tremendous sincere whether or not you prefer it or not. We ask her, ‘what would you do if it had been you or your partner,’ and he or she’s straight with us,” Povinelli mentioned.

Since March, he has accomplished six rounds of chemotherapy and was in remission till Might. He began immunotherapy after which had a stem cell transplant on October twenty ninth.

Throughout his therapy time, Povinelli turned to LEGO constructing to assist distract him. After graduating from Purdue College with a level in gross sales and administration, Povinelli mentioned he grew to become a “serial entrepreneur.” These companies embody, an exterminating commerce, began by grandfather within the Nineteen Forties, actual property, and accumulating and promoting LEGO components.

Above all, Povinelli loves being a father.

Derek Povinelli

“Being a father is what defines me. I’ve a detailed relationship with my dad and ever since I grew up, that is all I needed to be. My ladies are so vital to me,” Povinelli mentioned. He had two daughters of his personal when he reconnected with Shelly. They each graduated from Roncalli Excessive College a yr aside. Shelly had two daughters and once they began on the lookout for methods to contain their ladies in a household mission, they turned to LEGOS.

“All 4 of them are very totally different, however all very inventive,” Shelly mentioned. One loves portray, one other loves music, one other drama, and one other crafts. Constructing LEGOS was a inventive outlet.

“Once I was recognized with most cancers, I used to be capable of work on LEGOS and never take into consideration the most cancers,” mentioned Povinelli. Over time, they’ve collected virtually 100,000 spare components, which they distribute by “Stallion Bricks & Figs,” on-line. “My long-term purpose is to ultimately have on-line auctions and provides a refund to Riley Hospital,” Povinelli mentioned. “Maybe I may also assist assist the grownup sufferers, as I loved it a lot.”

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